A founder-led initiative based in Nairobi, Kenya, established to improve the wellbeing and life opportunities of children and adults living with albinism. The project begins with a known community of around 20 children and a few adults, and is intended to grow into a credible, organised foundation that can serve people affected by albinism across Kenya and, ultimately, beyond.
The project focuses on practical, urgent support needs that directly affect health, safety, and daily functioning — especially skin protection and eye care. This includes access to sunscreen/sun lotions, wide-brimmed hats, long-sleeved protective clothing, and appropriate glasses (including photochromic lenses and sunglasses). Alongside these immediate needs, the project places strong emphasis on education support and empowerment, recognising that educational progress strengthens independence and is one of the most effective long-term tools for reducing stigma and discrimination.
Currently at early setup stage, operating primarily through mobile-based coordination, and seeking the funding and partnerships needed to establish a modest operational base and deliver services reliably. The intention is to work collaboratively with clinics, schools, NGOs, local leaders and government stakeholders, supported by strong governance and transparent reporting so that donors and partners can clearly see where resources go and what outcomes are achieved.
Albinism Advocacy Africa is a proposed Kenya-based foundation (starting in Nairobi) led by founder Lilian Mwende. The project currently has no formal office and no management team, and operations are constrained to what can be done via a mobile phone and internet bundles.
The project aims to address urgent, practical needs for people living with albinism, particularly:
At present, the project is at a “startup” stage: there are no active partner organisations yet, but there is strong intent to incorporate government and other key stakeholders as the foundation is established. PHC support will structure the early work into a credible plan that donors and partners can trust.
Timeline: 1 Week
Focus: Diagnostic review to confirm feasibility, define participant roles, and assess pilot readiness.
Activities:
Deliverables:
Timeline: 2 Months
Focus: Onboarding and setup of PHC systems, consultant induction, and local engagement.
Activities:
Deliverables:
Timeline: 3 Months (Renewable)
Focus: Real-time monitoring, adaptive support, and data gathering for public value evaluation.
Activities:
Deliverables:
| Category | Description | Total Cost |
|---|---|---|
| Cloud Services / Data Storage | Data storage for project datasets and real-time reporting | £1,900 |
| PHC Start Pack - Hardware (*1) | A set of 5 Single Board Computers, Monitor and UPS | £1,442 |
| PHC 7-Day Review (*2) | PHC Service for Pre-start Review (7 days) | £277 |
| PHC Setup (*2) | PHC Service during 2-month Setup Phase | £2,076 |
| PHC Continuation (*2) | PHC Service during 3-month Continuation Phase | £3,236 |
| Miscellaneous | Travel, training, insurance, and other variable costs | £1,000 |
| £9,931 |
| Category | Description | Total Cost |
|---|---|---|
| Single Board Computer Set x5 | Raspberry Pi 500, Mouse, hdmi cable, power cable) | £722 |
| Monitor x5 | Mini-Monitor (for RP500) | £480 |
| Site UPS | Uninterruptible Power Supply (UPS) for site computers. | £240 |
| £1,442 |
| Role | People | Hourly Rate | M1 | M2 | M3 | M4 | M5 | M6 | Total (GBP) |
|---|---|---|---|---|---|---|---|---|---|
| PHC Strategist | David Winter | £12.60 | 10 | 8 | 8 | 8 | 8 | 8 | £630 |
| PHC Analyst | Abubakr Harakat | £8.40 | 5 | 16 | 16 | 16 | 16 | 16 | £714 |
| PHC Admin | PHC Admin | £4.90 | 5 | 24 | 24 | 24 | 24 | 24 | £613 |
| PHC Trainee | [name1] [name2] [name3] |
£1.68 | 0 | 48 | 48 | 72 | 72 | 72 | £524 |
| Funding Ready Leaders | Lilian Mwende Elsie Laine [name3] |
£8.40 | 10 | 72 | 72 | 72 | 72 | 72 | £3,108 |
| Total | £277 | £1,038 | £1,038 | £1,079 | £1,079 | £1,079 | £5,589 | ||
Footnote - People Costs and PICS Eligibility: The people-related costs shown above relate to funded governance, delivery, leadership, and trainee roles agreed at the outset of the project. These paid hours are not eligible for PICS (Pro Bono Social Impact Credits). PICS applies only to unpaid or underpaid service contributed outside funded roles. PHC Service maintains a clear, auditable separation between funded work and any pro-bono contribution, preventing double recognition while ensuring transparency to funders.
Appendix Highlights:
| Category | Month 1 | Month 2 | Month 3 | Month 4 | Month 5 | Month 6 | Total |
|---|---|---|---|---|---|---|---|
| IT Tooling | 0 | 0 | 0 | 1,900 | 0 | 0 | 1,900 |
| PHC Start Pack | 0 | 0 | 1,442 | 0 | 0 | 0 | 1,442 |
| People - Review | 277 | 0 | 0 | 0 | 0 | 0 | 277 |
| People - Setup | 0 | 1,038 | 1,038 | 0 | 0 | 0 | 2,076 |
| People - Continuation | 0 | 0 | 0 | 1,079 | 1,079 | 1,079 | 3,237 |
| Miscellaneous | 500 | 500 | 0 | 0 | 0 | 0 | 1,000 |
| TOTAL | 777 | 1,538 | 2,480 | 2,979 | 1,079 | 1,079 | 9,932 |